THE HARD TRUTHS OF BEING YOUNG WITH KIDNEY DISEASE – WITH HAILEY HOGAN
“Soccer doesn’t really wait for you… it was completely shattering and it felt like a punishment. It was really sad.”—Hailey Hogan
Hailey has more insight and understanding of kidney disease than any 20-something should have. Diagnosed at the early age of 15 she was quickly thrust into a world of medical testing, uncertain futures, and adjusted expectations.
Listen in as she candidly explains the roller-coaster ride of figuring out life with her condition.
You’re sure to walk away with admiration for her daily courage, a mature grasp of complicated procedures, and her determined efforts to Go Be More.
SHOW NOTES
(3:47) Hailey shares about her childhood in Ohio and a family move to Arizona.
(5:44) “…something is really not right.” Hailey’s symptoms that led to the diagnosis.
(10:48) “… still scratching the surface on the kidneys,” Jon asks Hailey about her thoughts on testing.
(12:14) The problem with symptoms…
(14:10) “… the kidneys, like most of your body, is very connected to each other. And it really helps if you can have a holistic approach to your medicine.” Jon and Hailey talk about the need for earlier testing.
(15:45) Hailey shares her heartbreak with soccer.
(17:53) Robotic pyeloplasty and other new normals…
(19:44) Realities sink in…
(21:18) What are the 5 stages of kidney disease?
(22:39) “…it’s different because you’re in this weird spot where you’re like, how much do I need to change my lifestyle? And where does that begin and end?” Hailey shares about the confusing nature of a silent condition and how it impacts her thoughts.
(22:56) For the love of powerlifting…
(24:24) Are the treatment protocols handled well?
(28:16) Why it’s terrifying to leave your pediatric nephrologist and the different approaches to pediatric and adult kidney disease.
(34:04) There’s a need for a consistent scale.
(38:25) “And I think the healthcare system is one of those things where I think that with like a lot of things going on in our country, I think we need a revolution. I think we need to just do something different. And even if it’s small, let’s create a good example of something that works and then scale that.”
(39:11) 1% of the federal budget goes to paying for dialysis.
(39:42) John Oliver, an investigative journalist tackles the DaVita dialysis controversy with a humorous video.
(45:32) How do you handle the many aspects of life with kidney disease—particularly the mental health challenges?
(47:24) “I actually struggled to breathe.” Hailey shares a scary story that resulted from a complication after surgery.
(53:06) Working through what’s in your control and what’s not.
(55:13) Hailey shares her passion for kidney disease advocacy.
(58:47) What the message of Go Be More means to Hailey Hogan…
If you liked this episode, check out our interviews with Kidney Fighter Marc Coronel and soccer coach/kidney warrior Jeremy Bedig
And, you can now get these show notes sent directly to your email. Sign up here!
Recorded August 28, 2020.
References:
Last Week Tonight: Dialysis – YouTube
Guest:
Hailey Hogan – @thepinkpowerranger1
LOVE THE POD? LEAVE US A REVIEW ON ITUNES!
It’s the best way to help us grow, and we’ve made it super easy. Just click here: iTunes Ratings and Review
